“I really like the simplicity, honesty, accessibility, sincerity and integrity used in the style of the book.”
“So in the book, the things that people said, and things and the goals and stuff they’ve done to succeed in what they do, it helps, it does help if you sit and you read and you look how people fight through what they’re going through, what their disabilities are, and how they fight to get to where they want to be. I think that helps.”
“Yeah, I think it’s quite good from that point of view, especially if you’re in the early stages of an illness, because you tend to feel you’re the only one. It’s only when you’ve met lots of other people with the same condition that you begin to realise that it’s not just you.”
People with LTC's and their family members, London
Long-term (neurological) conditions self-management tool
A book for people living with long-term conditions
Contains stories, experiences, tips and ideas from people who are living with different long-term conditions and allows them to learn from others, record how they are doing and feeling as well as small steps. Ten people have shared their experiences of the twist and turns of living with different long term conditions including people living with the early stages of dementia, Parkinson’s Disease, MS.
This book was made possible by a grant from the South London Health Innovation Network/Health Education South London. The development was supported by feedback and ideas from people who are living with long-term conditions, and professionals working for health, social care and voluntary organisations in Lewisham, London UK.
Please note the Long Term Conditions book is only accessed as part of our training packages and are not sold separately.