The project is being led by Scott who works as Communication and Engagement Manager for Bridges. Scott experienced a severe stroke which left him with significant mobility issues and blindness, and knows first-hand what it feels like to experience both positive and negative interactions with healthcare services.
NeuroVoices was commissioned by The SouthWest London Health and Care Partnership and run in collaboration Dr Niran Nirmalananthan (Neurologist) and Dr Nicky Williams (GP) who co-lead the Neuroscience network. The new clinical network structures which have been developed across Southwest London provide an opportunity to re-think and re-imagine how services are delivered and this project will ensure patients views and opinions are at the centre of this work.
NeuroVoices will fully co-design a PPI strategy with people who are ‘seldom heard’ e.g. people with conditions that might be progressive and complex, or from low socio-economic and ethnic groups. These people are often under-represented in PPI activities so creative methods of engagement will be used. We will have several work packages adapted specifically to the needs of people with neurological problems. These include a survey, narrative interviews, production of a trigger film and co-design events.
This project will complete in 2022 and will create a PPI strategy to be used by anyone working in Neurological services to improve the quality of care for people with Neurological conditions.